Links

SAGE Resources provides links to other websites for convenience and reference.  This is not intended as an endorsement by us. 

We do not warrantee that websites linked will be free of infection by viruses.  Individuals should make sure they maintain proper computer security and protection.


National and State Specific Data Sets on System Performance

The National Core Indicators Project
www.NationalCoreIndicators.org
The National Core Indicators is a collaboration among participating National Association of State Directors of Developmental Disability Services (NASDDDS) member state agencies and the Human Services Research Institute (HSRI), with the goal of developing a systematic approach to performance and outcome measurement.

Research and Training Center on Community Inclusion
http://rtc.umn.edu/main/
The Research and Training Center on Community Living provides research, evaluation, training, technical assistance and dissemination to support the aspirations of persons with developmental disabilities to live full, productive and integrated lives in their communities.

State of the States in Developmental Disabilities
www.cu.edu/ColemanInstitute/stateofthestates
Established in 1982 to investigate the determinants of public spending for intellectual/developmental disabilities (I/DD) services in the United States.


Assessment of Support Needs

Supports Intensity Scale (SIS)
www.siswebsite.org
The SIS evaluates practical support requirements of a person with an intellectual disability through a positive and thorough interview process.

Inventory for Client and Agency Planning (ICAP)
www.riverpub.com/products/icap
Inventory for Client and Agency Planning (ICAP) specializes in assisting organizations with client assesment tools and data.


Rate Adjustment and Analysis

Burns & Associates, Inc.
www.burnshealthpolicy.com
Burns & Associates, Inc. (B&A) is a health care consulting firm that specializes in assisting state governments and private entities develop customized, innovative approaches to the financing and delivery of health care and human services.

Navigant Consulting
http://www.navigantconsulting.com/industries/government_services/
The professionals of Navigant are poised to help governments and public agencies to deliver successful programs. With strong expertise in finance, technology, public procurement, commercial management, project and resource management, Navigant help clients mitigate risk and optimize performance.


National Disability Associations

Directory of State Developmental Disabilities Agencies
www.nasddds.org/MemberAgencies/index.shtml
Find disability agencies in your area to meet your client needs.

AAIDD - The American Association on Intellectual & Developmental Disabilities
www.aamr.org
AAIDD, (formerly AAMR -- American Association of Mental Retardation) is the oldest and largest interdisciplinary organization of professionals and citizens concerned about intellectual and developmental disabilities.

AUCD - Association of University Centers on Disability
www.aucd.org
The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs.

ANCOR - American Network of Community Options and Resources
ancor.org
The American Network of Community Options and Resources is a nonprofit trade association representing and advocating on behalf of the more than 800 private providers of services and supports for nearly 500,000 Americans with disabilities that employ over 400,000 direct support staff in 49 states and Washington, D.C.

Consortium for Citizens with Disabilities
www.c-c-d.org
The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.

National Association of Councils on Developmental Disability
www.nacdd.org
NACDD places high value on meaningful participation and contribution by Council members and staff of all Member Councils, and we advocate and continually work towards positive system change on behalf of individuals with developmental disabilities and their families.

TASH
www.tash.org
TASH is an international membership association leading the way to inclusive communities through research, education, and advocacy.

NASDDDS - National Association of State Directors of Developmental Disabilities Services
www.nasddds.org/
The National Association of State Directors of Developmental Disabilities Services (NASDDDS) is a nonprofit organization, established to improve and expand public services to people with intellectual and other developmental disabilities.


National Self-Advocacy Resources

The Riot!
www.theriotrocks.org
The Riot! is an e-newsletter for self-advocates, by self-advocates. The Riot! works to give self-advocates a medium to speak up for themselves and others. Issues of The Riot! come out quarterly and can be downloaded from the website.

ACT – Advocating for Change
www.selfadvocacy.com
ACT, a not for profit, run by and for individuals with developmental disabilitites works to connect individuals with disabilities and allies to together to tell their stories, make friends, compare struggles and celebrate life.

Self Advocates Becoming Empowered
www.sabeusa.org
The United State's national self-advocacy organization. We are a national board of regional representatives and members from every state in the US.

National Youth Leadership Network
www.nyln.org
The National Youth Leadership Network (NYLN) is dedicated to advancing the next generation of disability leaders.


Disability Related Resources

The Arc Link
www.thearclink.org
TheArcLink’s goal is to provide resources that empower individuals with disabilities and their families to make sound choices about services.

Medicaid Reference Desk
thedesk.info
Information about Medicaid for people with cognitive disabilities

SSA Home Page
www.ssa.gov
U.S. Social Security Administration Homepage.


Technical Assistance Resources

hcbsselfdirection.org
http://www.hcbsselfdirection.org/
Sponsored by the Centers for Medicare & Medicaid, HCBSSelfDirection.org provides technical assistance to state agencies pursuing 1915(c), 1915(i) and 1915(j) Home and Community Based Services waivers and state plan amendments.

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